ReviewCommunicating results in post-Belmont era biomonitoring studies: Lessons from genetics and neuroimaging research
Review articleOpen access
Abstract:

Highlights•Biomonitoring in community-engaged research challenges norms about results communication.•Genetics and neuroimaging research provide valuable ethical lessons related to results communication.•We examine ethical tensions between participants’ right-to-know and their right-to-act; whether to report incidental findings; informed consent in biobanking; and data sharing.•Democratic forms of human subjects protection include shared governance of biorepositories, development of results communication protocols, and open access databases.

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